THE FUNDATION SUMMER CAMP

WE ARE FINANCING SUMMER CAMPS

FOR EPILEPTIC CHILDREN

WHY?

For a majority of kids, summer means vacation but also the occasion to participate in different activities, spend time with their parents, discover new things and make new friends. For many, it also means summer camp. It is a popular trend nowadays where you can find activities for all tastes: culinary school, equestrial camps, science camps, sports camps, etc. While this chance to live an exciting experience away from home should be offered to all kids, children living with epilepsy, with or without visible handicap, cannot attend most camps. Imagine having to explain to your child, who is already being stigmatized at school by his friends and neighbors, that he cant go to the camp he always wanted to try because of his condition.

ADAPTED CAMPS DESIGNED FOR THEM!

In 2012, we decided to create a summer camp specifically for children with epilepsy. This camp was made so that they could socialize and take part in activities they aren’t usually allowed to do. They can do karting, cooking, horseback riding, spend a day at La Ronde, surrounded by professionals (neurologist, ergotherapist, nurse, etc). They can have fun in a different environment yet in a safe context. The goal of the camp is simple but so important : Allowing children to improve their confidence (towards themselves and others), building a strong self-esteem and socializing with kids that are living the same reality, kids they can identify to.

INSTRUCTORS

Joseph-Arthur Simard

Passionate about the outdoors, skiing and biking, I study economics and politics and then move towards hotel management. Having been a summer camp camper being younger, it was only natural to become a volunteer as a coach for the Charles Guindon Foundation at the Auberge where I work a good part of the summer. Especially since getting involved with Dr. Carmant is always a pleasure. Being part of the foundation’s summer camp team has always been an amazing experience and having the chance to see young people evolve over the years is a real privilege.

Alexe SIMARD

Alexe graduated in biomedical sciences at the Université de Montréal and wishes to continue his career in the field of medicine. She worked for two summers with Dr. Carmant in Sainte-Justine in her research laboratory on epilepsy. Until then, she had little knowledge of this disorder. His experience at the hospital allowed him to explore the many facets and made him want to become more involved in the Charles Guindon Foundation. She has been a summer camp instructor since the beginning and will continue to bring her energy and dynamism to the CA team!

Josée Anne LAPORTE

I introduce myself, Josée-Anne, clinical nurse. I have been working at Ste-Justine Hospital for almost 10 years. It was very important for me to work with children! Currently, I am a nurse at Victor-Doré School, which is a school for students requiring physical rehabilitation. Many students who attend also have a diagnosis of epilepsy so I am constantly learning about this topic. I consider myself privileged to be part of the camp team! Every year, we spend a wonderful week filled with beautiful moments with young people!

Marc André GAUTHIER

Kinesiology student and passionate about medicine, my first contact with the Charles Guindon Foundation was in November 2014, when I bought a ticket for the annual evening of the foundation. Touched by the cause, I immediately wanted to get involved while sharing my eternal dynamism wisely. It was then that I decided to contact Dr. Carmant to apply for a monitor position at the camp. Recognizing his confidence, I was still far from suspecting that this week in the camp would spring a great sense of community to which I would be attached forever. What characterizes this community is first and foremost a desire to stop the stigma associated with diseases such as epilepsy and to encourage young people to become individuals proud of their individuality. Thanks to Dr. Carmant, this is made possible every year.

Renée HAMILTON

I have been working at Ste-Justine UHC since 2007 and worked as an occupational therapist in the trauma-surgery program for 8 years. I am now pursuing my involvement within the organization as a professional leader in occupational therapy to promote the development of the practice and thus contribute to improving the care and services offered to children and adolescents in Quebec. Part-time student, I am currently completing a master’s degree in public health at the Université de Montréal. My interest in global health has led me to participate in various development and teaching projects in developing countries such as Haiti and Burundi. I have worked since 2012, among other things, on the establishment of a pediatric rehabilitation program at Port-au-Prince’s epilepsy clinic. The project was born from a collaboration with Dr. Lionel Carmant, who in addition to his involvement with the Charles Guindon Foundation, is also very much involved in improving child health care in Haiti. The primary goal of the project is to prevent disability through early intervention and improve the quality of life of young people with disabilities in Haiti. Wanting to broaden my involvement with children with epilepsy here in Quebec, it is with great interest that I joined the Charles Guindon Foundation team in the summer of 2012. It is a great pleasure for me to participate every year. to the completion of this summer camp that allows young people to live rewarding experiences and to break the taboos of this still little known disease.

Isabelle MARTIN

I started my practice at CHU Ste-Justine in 1994. In 2010, I headed for a practice in private. Based on my experience, I practice my profession with a pediatric clientele as a self-employed worker and I am also part of a multidisciplinary team at Center Philou that works with children with severe disabilities. Since 2008, I contribute to the transfer of expertise with a surgical and medical team in pediatric heart disease in some countries in the Middle East (Egypt and Morocco) and Africa (Ethiopia). When Dr. Carmant asked me to be part of a team of monitors with teens with epilepsy, it was with great enthusiasm that I accepted. The work and the accompaniment made with young people remain a great privilege. They are for me an inexhaustible source of energy and wonder.

Lionel CARMANT

I am a neurologist specializing in pediatric epilepsy. I was director of the Epilepsy Clinic from 1994-2014. I am now the medical director of CIRENE, an institute whose mission is to improve the neuro-development of all children, whether they have epilepsy, autism or learning disabilities. I was also a soccer coach from 2000 to 2012 for the cities of Mount Royal and Outremont with groups ranging from U8 to U18 guys and girls. My interest in the Foundation is to combat the stigma associated with epilepsy and which affects many of my patients and to develop research

I am a neurologist specializing in pediatric epilepsy. I was director of the Epilepsy Clinic from 1994-2014. I am now the medical director of CIRENE, an institute whose mission is to improve the neuro-development of all children, whether they have epilepsy, autism or learning disabilities. I was also a soccer coach from 2000 to 2012 for the cities of Mount Royal and Outremont with groups ranging from U8 to U18 guys and girls. My interest in the Foundation is to combat the stigma associated with epilepsy and which affects many of my patients, and to develop research on epilepsy, an age-old disease whose complexity makes it difficult to not a priority for most laboratories.

Bertrand LEDUC

I am completing a Bachelor’s degree in Biomedical Sciences at the Université de Montréal. For 5 years, I volunteered at the YMCA as a tutor for children with learning difficulties. Then, I continued my community contribution to the CHU Sainte-Justine where I bring personalized help since June 2010 to children aged 0 to 18 who are hospitalized in the department of hemato-oncology.

My summers have always been filled with day camps where I taught tennis, soccer, badminton, and many other sports with the Académie Ménard-Girardin. I was also a volunteer accompanist at the Parc Soleil day camp for children with disabilities. I am currently doing a research internship concerning patients with epilepsy in the neurology department of CHU Sainte-Justine with Dr. Carmant. My participation as an instructor at the Charles Guindon Foundation Day Camp is a natural part of my journey. It is with great pleasure that I put all my energy, enthusiasm and dedication into contributing to the success of this unique day camp for children with epilepsy.

SUMMER CAMPS GALLERIES

2018 SUMMER CAMP

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2017 SUMMER CAMP

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2016 SUMMER CAMP

2015 SUMMER CAMP

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